Almost Home - leukemiasurvivor.com

Almost Home

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More counts return in the days that follow. Platelets are back. Polys creep higher. Hematocrit is up. Everything is up. It couldn't be anything other than sudden, but it's still surprising, and it lightens everybody's mood.

In a matter of days, we've moved from dark, ominous discussions about searching for an emergency bone marrow donation -- maybe even accepting a partial 4/6 match because it was looking more and more likely that my marrow would never recover on it's own -- to laying out the requirements for my departure. I'll still need to come back later in the spring and summer for more treatment, two more rounds of consolidation chemotherapy, but I'll be allowed some home time between those two rounds.

"Your counts will need to be at certain levels," Cindy tells me. "Your doctors should be telling you more about it, but there's some minimum thresholds they'll want before you can go home. Not just the main ones, either. There'll be a lot of different numbers they'll be looking at."

"How long?" I ask.

"Before you're back home?"

"Yeah. How long do you think it'll take before I can get out of here?"

"It depends," she says. "Depends on how quickly all of your counts recover. I wouldn't want to say. It'll be up to the docs."

"Can you guess?"

I'm itching. I am so ready to get out of this hospital, back to my house, my bed, a neighborhood that I'm familiar with, a couple of different loops, a mile or two, that I can run or bike. Being able to get up and out of bed, to actually get dressed again, to go out to restaurants, movies, whatever. Not to mention that it's less than two weeks, now, until I'm twenty-one. I can't wait.

Cindy smiles.

"You're doing awesome, Robert. You really are. You'll be home soon enough."

"Next week?"

Now she laughs.

"Just be patient. It won't be long, now."

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A Few Notes

robert (now and then)
(hover to see RKB in 1990)
After running two marathons in October 2010 with Team in Training, I've decided to "slack off" with just the one marathon in 2011.

This year will be in memory of Siona Shah, an amazing young girl who spent the final third of her too-short life battling leukemia with courage, grace, humility, and smiles.

It will also be in memory of my step-grandmother, Ruth, who passed away on June 15th after a recurrence of Non-Hodgkin's Lymphoma.

I'd originally started using this site to tell my story -- roughly eight months of treatment in 1990, as well as the impact leukemia had on me in the years that followed. Much of that story is still available through the "Table of Contents" below (starting with my initial diagnosis while I was studying in England).

 - Robert K. Brown
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