Miscellany

About This Site

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This is an experimental writing tool. Blogging is an excellent way to write a little bit, every day. That's all fine and good, except that there's something that I've been meaning to write about for the better part of ten years now. So instead of finding links (and interesting articles, and humorous anecdotes) to fill my calendar day after day, I will try to piece together my own history with leukemia.

As much as I want the story to be linear -- and as much as I realize that the finished product most likely will follow in chronological order -- I can't command my mind to remember it the way I want to write it.

So I will bite off a little bit here and a little bit there. I will categorize the memories. That's what matters. Because I expect to be writing exclusively about the past, the current calendar seems less than useful. I may change my mind about this, the further I get into documenting my history. But for now, everything goes to a category. The home page will still retain recent work, but archived "posts" all belong to a greater whole.

For that matter, I reserve the right to edit any post, for any reason. I will be using a blogging tool at the same time that I fly against some blogging "conventions." No calendar, for example, and when you view my "categories" (i.e. the Table of Contents), the display order is reversed, so it should read the way the story unfolded.

'Nuff said. Time to build some back story.

Thanksgiving 2003

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Written last year, but still applicable today. Two big reasons to be thankful.

It was probably Dr. Collins who first brought the possibility to my attention. My chemotherapy would be very strong. Lots of nasty side effects, some short-term, some, maybe, long-term. And this doesn't even include the chance that I might have needed a bone marrow transplant. That process is much more involved, with the stated goal of "obliterating the marrow function."

I don't think it had even been two weeks since my diagnosis, and I'd pretty much focused on what I'd considered a long-term goal: get healthy enough to return to school in the fall. Six months away was about as far down the road as I wanted to plan.

Dr. Collins, on the other hand, was definitely thinking long-term. Before the chemicals started slowly dripping into my Hickman catheter, she asked if I wanted to, umm, make a donation. The phrase "put some sperm on ice" may have entered the conversation. She didn't know. She couldn't say for certain, at my age, with the chemo, with other drugs meant to mitigate the side-effects of the chemo, well, she simply could not say one way or another if I'd ever be able to have children.

I was twenty years old. A month earlier, the most important decision I needed to make was whether or not I wanted to listen to Kate Bush or Neneh Cherry while I played pool with "da boys," whether I would be drinking Beck's or Guiness. The thought of one day having children had never entered the equation. There wasn't much time to decide, and my future vision was still pretty myopic.

I did not, shall we say, make any deposits in the spring of 1990.

ej_w_dolls.jpg

Consider me absolutely, eternally, unbelievably thankful for the way things have turned out so far, all things considered.

Time, Flying

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It has been brought to my attention, recently, that it's probably not the best thing to have a five year gap on a website chronicling my adventures with leukemia. Couple that with the fact that comments have been broken for I-don't-know-how-many-years and it might have appeared that the site was dead and unresponsive because, well, I was, too.

Not at all true. In fact, within the past few months, I've celebrated nineteen years in remission, as well as my fortieth birthday. I am returning my focus and attention here after a very long absence.

Unfortunately, while attempting to clean things up a bit, a few things were inadvertently broken along the way. I apologize for the mess. Should be able to muddle through the updated MT templates over the next couple of weeks and put together a serviceable design.

Update(s)

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Some long overdue changes are going to be made around here. Among other things, there will be less of the "story" available (and maybe organized a little better). Colors might change. Might also drop a few other links here and there, in particular to highlight what's I'll be doing to celebrate twenty years in remission.

Much more to follow.

Please Donate

Click here to make a donation to the Leukemia and Lymphoma Society.

A Few Notes

rkb in 1990
2010 marks my twentieth year in remission from AML. To celebrate, I will be training for and running two marathons with Team in Training: Twin Cities on October 3rd, and Dublin, Ireland on October 25th.

I'd originally started using this site to tell my story -- roughly eight months of treatment in 1990, as well as the impact leukemia had on me in the years that followed. Much of that story is still available through the "Table of Contents" below (or through the site archives).

But now I will also be writing about my training and fundraising goals, progress, as well as other thoughts, feelings, and experiences along the way for this milestone anniversary.

 - Robert K. Brown
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Table of Contents

Recent Comments

  • RKB: Thanks, Melissa. I thought this was a pretty compelling ad. read more
  • Melissa A: Wow! Pretty powerful Robert. This really resonates with what you read more
  • Melissa A: $10K! GREAT JOB with your follow-up and on hitting this read more
  • RKB: Thanks, Tina. I do love this quote -- a nice read more
  • RKB: Thanks, Katie! Appreciate the kind words, and the donation, too! read more
  • Katie Meister: Totally Amazing! I cannot seem to get my mind focused read more
  • Tina Stello: Robert, what a great quote! I work with Melissa and read more
  • Rich P: This is a great quote. read more
  • Melissa A: I am so excited for you for breaking the $3K read more
  • Melissa A: Less than a week! You are a ROCK STAR fundraiser!! read more
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